The boy in the moon

By Brown, Ian

Subjects: Parents of handicapped children, Fathers and sons, Biography, Genetic disorders, Patients, Biographies, Father-son relationship, Genetic disorders in children, Parents of children with disabilities, Maladies génétiques chez l'enfant, Family relationships, Relations familiales, Handicapped children, Parents d'enfants handicapés, Pères et fils

Description: Ian Brown's son, Walker, was born with a genetic mutation so rare that doctors call it an orphan syndrome: at most, three hundred people around the world live with it. At thirteen, Walker is still in diapers: he is globally delayed, he can't speak, and he has to wear cuffs on both arms so he won't constantly hit himself. He will require constant care for the rest of his life. The boy in the moon tells the story of one frail boy and the tiny constellation of people who love and care for him. From this intimate perspective, Ian Brown opens out a profound meditation on what life is worth, and what it means for all of us.